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Cochlear Implant University Self-Advocacy Skills-Building for Students with Cochlear Implants During the Transition to College

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The Cochlear Implant University (CIU) is an interactive, self-advocacy skills-building website to support high school and college students with cochlear implants and their parents during the transition to college.

Self-advocacy is the ability to effectively communicate, convey, negotiate, or assert one’s interests, desires, needs, and rights. Self-advocacy is critical to a successful college transition for students with cochlear implants because it enables students to overcome challenges they may face in college. CIU targets students beginning the college planning process in 10th grade through the end of freshman year in college as students settle into their new environment, although the information in CIU is applicable to students throughout their college career.

The college transition can be an exciting time of change for all students, but students with cochlear implants are at risk for academic and social challenges because upon high school graduation they leave behind the supports—such as parents, school staff and legal structures—that advocated for their academic and social needs. In college, responsibilities for accommodations shift from parents to students. Therefore, students with cochlear implants must self-advocate to receive accommodations. This requires students to navigate legal structures protecting their right to classroom accommodations, such as assistive listening devices or note-takers; knowing what accommodations they require; contacting the Office of Disability Services to secure accommodations; and troubleshooting any technical problems with their cochlear implants. Once students request accommodations, colleges require verification of student disabilities and each college sets its own standards for documentation.

Securing and managing accommodations are the first challenges, but others may follow. Because students with cochlear implants often use listening and spoken language as their primary means of communication, people often perceive them to have typical hearing, misunderstand their communication difficulties, and believe that they do not need special accommodations. Unlike K-12 teachers who adopt new teaching strategies for students with cochlear implants, college faculty are not required to modify their instruction style. The student therefore, must self-advocate to overcome challenges associated with learning in larger class sizes and noisier environments, for example by requesting seating most optimal to hear the professor. Finally, students with cochlear implants are faced with educating new peers about cochlear implants and the devices’ communication limitations, such as difficulties hearing in group situations. A core set of self-advocacy knowledge and skills can prepare students with cochlear implants to handle these challenges and succeed academically and socially in college.

As a self-advocacy training tool for students with cochlear implants, CIU builds knowledge on college transition topics such as college planning, identifying college accommodations, applying for accommodations, self-advocating in challenging social and academic situations, and increasing self-advocacy skills among students with cochlear implants. CIU also provides information for parents. Once 18 years old, students with cochlear implants are adults and their parents cannot advocate on their behalf, for example to receive accommodations. However, parent involvement relates to more positive educational outcomes among students with cochlear implants. Therefore, CIU will strengthen parental knowledge and their ability to support their student during the college transition.

KDH Research & Communication (KDHRC), a public health and public policy research institution in Atlanta, Georgia, received funding from the National Institutes on Deafness and Other Communication Disorders to develop and evaluate CIU. KDHRC is finalizing the CIU content and will evaluate it with high school and college students with cochlear implants and parents of high school and college students with cochlear implants this fall. There will be opportunities for high school and college students with cochlear implants and their parents to help us develop and test his exciting, new tool. For more information about the project: 

References

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Archbold, S., & O'Donoghue, G. M. (2007). Ensuring the long-term use of cochlear implants in children: the importance of engaging local resources and expertise. Ear & Hearing, 28, 3S-6S.

Bowe, F. G. (2003). Transition for deaf and hard-of-hearing students: a blueprint for change. Journal of Deaf Studies and Deaf Education, 8(4), 485-493. doi: 10.1093/deafed/eng024

Lang, H. G. (2002). Higher education for deaf students: research priorities in the new millenium. Journal of Deaf Studies and Deaf Education, 7(4), 267-280.

Marschark, M., Rhoten, C., & Fabich, M. (2007). Effects of cochlear implants on children's reading and academic achievement. Journal of Deaf Studies and Deaf Education, 12(3), 269-282. doi: 10.1093/deafed/enm013

McLeod, C., & Skoczynski, C. (2012). Working with students with cochlear implants. In Pepnet2 (Ed.): Beyond Hearing Aids, Inc.

[NCES], N. C. f. E. S. (2011). Students with disabilities at degree-granting postsecondary institutions.

NCSET (2004). Current challenges facing the future of secondary education and transition services for youth with disabilities in the united states. Minneapolis, MN: University of Minnesota.

NICHCY. (2010). Age of Majority. Retrieved November 6, 2012, from https://nichcy.org/schoolage/iep/iepcontents/age-of-majority

Powers, S. (2011). Learning from success: high achieving deaf students. Deafness & Education International, 13(3), 92-109. 

Teagle, H. F. B., & Moore, J. A. (2002). School-based services for children with cochlear implants. Language, Speech and Hearing Services in Schools, 33, 162-171. 

Test, D., Fowler, C., Wood, W., Brewer, D., & Eddy, S. (2005). A conceptual framework of self-advocacy for students with disability. Remedial and Special Education, 26(1), 43-54.

U.S. Department of Education, O. f. C. R. (2011). Students with disabilities preparing for postsecondary education: know your rights and responsibilities. Retrieved October 10 2012, from https://www2.ed.gov/about/offices/list/ocr/transition.html

VanReusen, A. K., Bos, C. S., Schumaker, J. B., & Deshler, D. D. (1994). The self-advocacy strategy for education and transition planning. Lawrence, KS: Edge Enterprises.

Zheng, Y., Caissie, R., & Comeau, M. (2001). Perception of hearing difficulties by adolescents who are deaf and hard of hearing and their parents, teachers, and peers in normal hearing. The Volta Review, 103(3), 185-202.

Source: https://www.agbell.org/

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